There is online information about the 5th European Conference on Rare Diseases. There are articles t...

There is online information about the 5th European Conference on Rare Diseases. There are articles that are extremely important, such as: The added value of centres of expertise for rare disease patients in Europe; The impact of a small parental network: how 11q improved research, knowledge, contacts and support; Determinants for research on rare diseases ;Individual plans and coordinated services: etc.
The link is:
Orphanet Journal of Rare Diseases | Articles in Volume 5 Suppl 1
www.ojrd.com